Today’s guest post comes from Anndi McAfee, a successful voice over artist. Check out her impressive IMDB credits. Your kids have definitely heard her voice.
Anndi also suffers from a rare disease and requires treatment with an orphan drug. Below, she shares her troubling experiences with SaveonSP, the mysterious company behind Express Scripts’ copay maximizer program. (ICYMI, I profiled SaveonSP in May.)
Anndi’s story illustrates how a patient taking a specialty drug can lose out, even as others—her health plan, its PBM, and a sketchy intermediary—profit from a manufacturer’s patient support funds. I suspect that very few patients with similarly complex diseases are as savvy and persistent as Anndi has been.
Read on for her disturbing story. You can reach Anndi via her professional page or on LinkedIn.
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